Showing posts with label Abilify. Show all posts
Showing posts with label Abilify. Show all posts

Friday, September 28, 2018

PERSONAL ESSAY - Letting the Diagnosis Sink In

Letting the Diagnosis Sink In
By "Anonymous"


One diagnosis didn’t convince me I had a mental illness.  I cherry-picked which diagnoses I’d accepted as mine and discarded the others like spoiled fruit. The first time, I thought I’d had a spiritual revelation.  The second time, I dismissed everyone around me as conspirators. The third time, the reports of my violent behavior skimmed the surface of my mind, as if they were fantasy stories about someone else. The fourth time, when my behavior threatened my employment at my dream job, I began to let it all sink in.  It forced me to stop distorting the reflection in my mirror. I’d believed my mind was my greatest asset and strongest defense, but it had turned on me and become my most formidable opponent. Could I outwit my demon and return to robust mental health?

It Came Out of Nowhere
My first manic episode happened in 2007, but I had no useful knowledge of mental illness in order to understand what was happening to my mind.  The attention from doctors and nurses was nothing more than a signal that I needed rest. Taking antidepressants was fine, as long as the condition was temporary.  The professionals weren’t sure how long I’d need to take medication, and it all seemed perfectly logical since I’d endured the trauma of my father’s death. But I hadn’t endured.  I’d collapsed. Without acceptance, I stayed collapsed.
The psychiatric staff gave me both physical and mental exercises to do to regain my functionality and I did them, temporarily.  I went a couple years off medications before another manic episode overtook me. That time, I refused to acknowledge anything I’d said or done was off.  My third manic episode let out rage but my conscious awareness was so sketchy that I didn’t know the full range of what I was doing or whom I was hurting.  The aftermath scared me, but it was all so confusing. I couldn’t believe I was capable of such violence against a person I loved. Denial shielded me from feeling shame.

Acceptance One - I Needed Meds
Through it all, I journaled, determined to deepen my level of self-awareness.  I also began seeing my medications as saviors. If I took them, I could stay out of the psychiatric ward.  I accepted that my condition was not a series of one-offs, but that I had slipped through a one-way door, never to return to normal-without-meds again.  That lasted for a couple years, until I was seduced by the futile hope that my meds were having no effect, and being without symptoms must have surely been proof that my meds no longer had a useful purpose.  I was wrong.
The offer of work at a prestigious spa with a storied past was the manifestation of a dream that I had pursued for two years.  I’d gone off my meds one August, started work in September, but by the end of December I was psychotic, loosely tethered to reality.  It’s kind of like being a hot air balloon that has a hole. I float up dreamily while the pinprick yawns into a gaping hole, and I fall towards an inevitable crash.  No amount of self-delusion can overcome gravity.

Final Acceptance
In the aftermath of that fateful day at Dream Job, the realization spreading in my perception was that I needed to shoulder some burden of responsibility for my state of mind.  I could no longer pretend Bipolar was a foreign language that I didn’t need to learn. I had to take charge of the totality of my health. If nothing else, I needed to be more involved in my own wellbeing.  The rivers of creativity and madness in my brain needed a valve regulator and that regulator was made of Risperdal and Cogentin.
While I believe my mental health practitioner needs to spend more time staying current and well-informed on the side effects of my prescriptions, I have my own access to the internet, and I’m not bad at vetting sources for reliability.  I’m now on low dose Abilify and don’t take normalcy for granted.
In the midst of it all, I’ve had to admit I have a voice and a good command of the English language, so I have no excuse for not writing it out.  With my meds as one link in my armor, I can face the daily challenges of life and regain trust in my mind and perceptions and senses. By taking my journey online, I’ve connected to a worldwide tribe who share their trials and strengths.  I’ve opened up to my cousin, who’s a good writer. She’s always wanted to write a book and my life was “great source material”.

The next links I’ll add to my armor are nutrition conducive to healthy mental states and daily exercise.  I plan to become formidable.

Monday, September 17, 2018

RANDOM THOUGHT - Time to talk about the Bipolar thing

The purpose of this blog was to discover what I even enjoy discussing, and to find an audience for my upcoming novel.  Going vegan at least one day a week, and where I eat, what I eat, when I have an epic fail - all fun.  Good times, good stories.

But I'm finding more than an audience.  I'm finding dialog with a tribe on Twitter (of all places). I'm finding people who deal with mental illness around the world.  You have no idea how badly I want this blog to reach Haiti and other countries where the symptoms of mental illness are thought of as demonic possession.  We're not in the grip of bad spirits.  Prayers certainly reach the ears of God, but we as humans are the hands and hearts of God on Earth.  Medicine and mental health providers are available and crucial.  Please stop tying people to trees.  Get them to a psychiatric practitioner of medicine!  If the first medicine doesn't work, try another.

I've seen it again and again that a person who needs treatment for cancer faces no stigma, but once something is wrong with the mind, the person is shrouded in stigma, as if she asked for it.

I didn't ask for mine. 

Stigma held it under wraps for many years, so I'm profoundly grateful to the less-than-a-handful of people I could talk to.  Without them, I might have gone deeper into the abyss. 

So many factors go into mental WELLNESS.  Healthy communication skills are vitally important.  I can't stress this enough.  Just as important is a support network that either understands my symptoms or is willing to journey with me as I educate myself on what my symptoms mean, what medications are available, whether I need a combination of meds and getting my dosage right.  My support network is quite small, but pretty effective and reliable.

The key is I have to be involved in my wellness.  That means asking my practitioner questions - grilling them if necessary.  It also means doing some research on my own.  Some professionals have ego issues and don't like being questioned.  I can walk right out their door until I find a professional who respects my input and involvement.  Right now, my psychologist would be totally useless to me if she didn't get me on Abilify.  She's condescending and I don't particularly like her.  But I have others outside her office who help me where she can't.

Meds are no joke.  Sometimes the side effects of psychotropic drugs are actually a worsening of psychotic symptoms.  That happened to me when I was prescribed too much Risperdal and Cogentin.  Just shifting the dosage downward made all the difference.  I stayed at low dose for years, until I was switched to the more modern Abilify (and happily my sex drive is back ON).

I want to say my bipolar is mild, but what does that mean?  My bipolar is wild, but the dosage I need to function is very low.  If my creativity is housed alongside the bipolar, then so be it.  If they are intrinsically bound, then I won't sacrifice one to get rid of the other.




My story is one of good fortune.  My bipolar was triggered long after my 20s, meaning my prefrontal cortex was already fully developed.  When it strikes youths, it can have very unpredictable effects on the developing brain.  Meds often don't work on the young because the effects are so widespread.  I'm LUCKY!

Admittedly, I need to take my own advice and get physically active, get the blood moving, get the arms and legs pumping.  I can be a couch potato, but it's social media that holds my attention, not television.  That sounds like an excuse, but I do need to get physically active.  Writing doesn't really lend itself to physical activity. I'll have to force myself to find a way.

Find me on twitter @MackenzieLitt13 and see who I follow.  You'll find lots of advocates, people with tips, and people who fight the good fight every day.  We're real.  We have each other and we have life with purpose.

Make someone else's day magical!
Mackenzie

#MentalHealthMatters
#KeepTalkingMH
#Bipolar
#DepressionIsReal
#EndtheStigma